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| Assessing Genetic Risks: Implications for Health and Social Policy
Lori B.
Andrews, Jane E. Fullarton, Neil A. Holtzman, and Arno G. Motulsky, Editors;
Committee on Assessing Genetic Risks, Institute of Medicine 352 pages, 6 x 9, 1994, ISBN
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Raising
hopes for disease treatment and prevention, but also the specter of discrimination
and "designer genes," genetic testing is potentially one of the most socially
explosive developments of our time. This book presents a current assessment
of this rapidly evolving field, offering principles for actions and research
and recommendations on key issues in genetic testing and screening.
Advantages of early genetic knowledge are balanced with issues associated
with such knowledge: availability of treatment, privacy and discrimination,
personal decisionmaking, public health objectives, cost, and more. Among
the important issues covered:
- Quality control in genetic testing.
- Appropriate roles for public agencies, private health practitioners, and laboratories.
- Value-neutral education and counseling for persons considering testing.
- Use of test results in insurance, employment, and other settings.
"Fluid
in style, rich in discussion and in concern for issues often neglected in
policy studies on human genetics, law, and ethics, this assessment goes well
beyond mere 'genetic risks'."--International Digest of Health Legislation
"...turn your attention to Assessing Genetic Risks: Implications for Health and Social Policy."--New England Journal of Medicine
"...it reads quickly and easily and the underlying messages are undoubtedly of international relevance."--Canadian Medical Association Journal
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